Improving service delivery for neuromuscular diseases: a survey of consumers at a tertiary Australian hospital
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Tay, George
Denby, George
Robinson, Jan
Douglas, James
Robinson, Peter
Curtin, Deanne
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Abstract
Patients with neuromuscular diseases benefit from coordinated multidisciplinary care to achieve best outcomes. The integration of multi-specialty healthcare delivered in a single clinic can be challenging for service providers due to cost and resource limitation. Our cross-sectional survey of 53 adult patients with neuromuscular disease across Queensland revealed only 27% support the introduction of an integrated multidisciplinary clinic. The most cited reason for opposition to a multidisciplinary clinic was a perceived loss of contact with one's usual doctor. Modifying service delivery in neuromuscular disease is a complex undertaking and will need input from numerous stakeholders.
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Internal Medicine Journal
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48
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12
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Cardiovascular medicine and haematology
Clinical sciences
Health services and systems
Public health
Science & Technology
Life Sciences & Biomedicine
Medicine, General & Internal
General & Internal Medicine
neuromuscular
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Anderson, J; Tay, G; Denby, G; Robinson, J; Douglas, J; Robinson, P; Curtin, D, Improving service delivery for neuromuscular diseases: a survey of consumers at a tertiary Australian hospital, INTERNAL MEDICINE JOURNAL, 2018, 48 (12), pp. 1520-1524