A general practice end of life care minimum dataset: GP communication and management practices at the end of life

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Chua, David
Mitchell, Geoffrey
Cook, Angus
Deckx, Laura
Licqurish, Sharon
Woolford, Marta
Ding, Jinfeng
Johnson, Claire
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2019
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Adelaide, Australia

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Abstract

Context: There is currently no way of observing what primary care end of life care (EoLC) is like, therefore no way of providing systematic EoLC improvement. We have developed a method to gather primary care data when a death is registered. This retrospective study tests the feasibility of the approach. Objective: To develop a minimum dataset from data automatically collected from general practice software, and GP observational data. Design: Cross-sectional retrospective data collection. Setting: Australian general practices in Queensland, Victoria and Western Australia. Participants: Fifty-seven deceased patients reported by eleven GPs from the last three years. Findings: GPs provided extensive communication in the pre-death period. This included phone consultations (50%), home visits (60%), family meetings (49%), hospice or hospital consultations (22%), GP management planning (63%) and patient or family counselling (62%). GPs considered themselves as the principal care coordinator in 53% of reported cases, and part of the wider management team in 29% of reported cases. Most (68%) were satisfied at their level of involvement at the end of life. Palliative care units (87%) and hospitals (60%) provided communication within the last week of the patient’s life, mainly by fax or phone. RACFs communicated mainly by phone. Implication(s) for practice: A minimum dataset is urgently required guide practice and policy changes to meet escalating numbers of deaths. Communication and care coordination was a major part of these GP’s roles, who were satisfied with the role they played. Facilities seem aware of the need to liaise with the patient’s GP.

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Australian Journal of Primary Health

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25

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3

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Health sciences

Human society

Psychology

Science & Technology

Life Sciences & Biomedicine

Health Care Sciences & Services

Health Policy & Services

Primary Health Care

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Chua, D; Mitchell, G; Cook, A; Deckx, L; Licqurish, S; Woolford, M; Ding, J; Johnson, C, A general practice end of life care minimum dataset: GP communication and management practices at the end of life, Australian Journal of Primary Health, 2019, 25 (3), pp. XXXVII-XXXVIII