Listening to the stories of lived experts provides health professionals with an opportunity to improve their understanding of the issues affecting people with lived experience and importantly to understand what is valued by individuals and assists in their recovery journey (Vojtila et al., 2021). It has been increasingly recognised that information, education, and support for post-stroke sexuality are at best, inconsistently, or at worst, rarely offered to stroke survivors and their partners (McGrath et al., 2019a; Prior et al., 2019). The World Health Organization defines sexuality as “… a central aspect of being human throughout life [that] encompasses sex, gender identities and roles, sexual orientation, eroticism, pleasure, intimacy and reproduction. Sexuality is experienced and expressed in thoughts, fantasies, desires, beliefs, attitudes, values, behaviours, practices, roles and relationships” (WHO, 2006, p. 5).