The experience of participation: eliciting the views of children on the autism spectrum

Loading...
Thumbnail Image
File version
Accepted Manuscript (AM)
Author(s)
Simpson, Kate
Imms, Christine
Keen, Deb
Griffith University Author(s)
Primary Supervisor
Other Supervisors
Editor(s)
Date
2021
Size
File type(s)
Location
License
Abstract

Purpose: Children on the autism spectrum are reported to participate less in leisure activities than their peers. Little is known about what participation means for this group and the child’s voice has been largely absent, partly due to methodological limitations. To address this limitation, alternative methods of eliciting children’s perspectives are needed. The aim of this study is to elicit children’s views about their participation experiences using a multi-method approach, and children’s feedback on the method.

Methods: Four children on the autism spectrum (9–13 years) used a video recording device to collect data over a 1-week period on their participation in activities. The children recorded an in-the-moment narrative to describe the activity and their in-the-moment experiences. A follow-up individualised interview was conducted, allowing children to present their unique views on their activity participation and feedback.

Results: The children’s differing perspectives identified participation as a transactional and dynamic process. Involvement was described as an individual and subjective experience, with participation influenced by personal, social, and physical factors. Children viewed the research experience positively. Recording while participating “in-the-moment” was challenging.

Conclusion: The first-person perspective provided unique insights into the children’s participation experiences. This approach has the potential to inform methodological practices.

Journal Title
Disability and Rehabilitation
Conference Title
Book Title
Edition
Volume
Issue
Thesis Type
Degree Program
School
Publisher link
Patent number
Funder(s)
Grant identifier(s)
Rights Statement
Rights Statement
This is an Author's Accepted Manuscript of an article published in Disability and Rehabilitation, 2021, copyright Taylor & Francis, available online at: https://doi.org/10.1080/09638288.2021.1903100
Item Access Status
Note
This publication has been entered as an advanced online version in Griffith Research Online.
Access the data
Related item(s)
Subject
Special education and disability
Allied health and rehabilitation science
Psychology
Biomedical and clinical sciences
Health sciences
Human society
Persistent link to this record
Citation
Simpson, K; Imms, C; Keen, D, The experience of participation: eliciting the views of children on the autism spectrum, Disability and Rehabilitation
Collections