The impact of early-stage dementia on community-dwelling care recipient/carer dyads' capacity to self-manage

No Thumbnail Available
File version
Author(s)
Stockwell-Smith, Gillian
Moyle, Wendy
Kellett, Ursula
Griffith University Author(s)
Primary Supervisor
Other Supervisors
Editor(s)
Date
2019
Size
File type(s)
Location
License
Abstract

Aims and objectives:

To explore the impact of early‐stage dementia on care recipient/carer dyads’ confidence or belief in their capacity to manage the behavioural and functional changes associated with dementia and to access appropriate support networks. Background:

Living with dementia has predominantly been explored from the carer perspective and focused on the stress and burden of supporting a person with dementia. There has been a shift towards a more positive discourse to accommodate the role of self‐efficacy in supporting self‐management by people living with dementia. However, little has been reported on the dyadic experience of self‐efficacy in managing life with dementia. Design:

A qualitative study using an interpretive descriptive approach. Semi‐structured interviews were conducted with 13 dyads in the early stages of dementia. The collected data underwent a process of thematic analysis. The study followed the COnsolidated criteria for REporting Qualitative research (COREQ) checklist. Results:

Dyadic adjustment to dementia was dynamic, involving shifts between loss and adaptation. Threats to self‐efficacy, declining autonomy and stigma, were significant causes of concern for both members of the dyad. Dyadic self‐efficacy was demonstrated through recognition of and adaptation to dementia‐related changes and development of coping strategies to integrate impairment into everyday life. Conclusions:

Solution‐focused approaches that improve knowledge and skills enable the dyad to adjust. The considerable impact of stigma on self‐efficacy indicates that supportive disclosure strategies developed in mental health may also have a role to play in dementia interventions.

Journal Title

Journal of Clinical Nursing

Conference Title
Book Title
Edition
Volume

28

Issue

3-Apr

Thesis Type
Degree Program
School
Publisher link
Patent number
Funder(s)
Grant identifier(s)
Rights Statement
Rights Statement
Item Access Status
Note
Access the data
Related item(s)
Subject

Public health not elsewhere classified

Nursing not elsewhere classified

Other psychology not elsewhere classified

Nursing

Health services and systems

Public health

Psychology

Persistent link to this record
Citation
Collections