The Right Information at the Right Time - co-development of approaches to self-management support across the continuum of care

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Gustafsson, Louise
Bower, Kylie
Dobe, Joshua
Walder, Kim
Lachman, Rosa
Kay, Kerry Ann Anderson
Baggio, Sophie
Roberts, Melanie
Plastow, Andrew
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2022
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Sydney, Australia

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Introduction: Self-management support after stroke assists people to develop the skills and behaviours to manage their recovery and adjust to their new selves. Education and information provision are a key starting point for this skill development, which includes skills in problem solving, decision making, resource utilisation, effective partnerships with health professionals, and taking action. Research highlights that self-management support can improve outcomes and there is a continuing need to develop approaches to self-management support along the continuum of care. Aims: To co-develop approaches to self-management support with people discharged from the acute care or rehabilitation unit following stroke. Methods: A participatory action research design led two co-design studies. The first study included people discharged from inpatient stroke rehabilitation (n =3) and their communication partners (n =2) and the second study included three people discharged to home from the acute stroke unit. Each study included three co-design cycles: idea creation, idea refinement, and priority setting. Inductive content analysis between each cycle created summaries and themes that were sent to the participants prior to the subsequent cycle. Results: The co-design processes with the people discharged from inpatient stroke rehabilitation led to three key recommendations: Health professional concierge and early family meeting; Peer support person; Adapt the hospital environment. Each were considered essential to create the foundation upon which education and skill development could occur. The co-design processes with the people discharged from the acute stroke unit led to a focus on the right information at the right time with (1) Individualised education from a health professional and (2) Follow-up education and support with a specialist health professional. Discussion: Both co-design processes led to suggestions for how current services could be shaped to better meet the needs of stroke survivors. The importance of personalised support for improved well-being and motivation was emphasised.

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International Journal of Stroke

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17

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1_suppl

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Subject

Neurosciences

Clinical sciences

Allied health and rehabilitation science

Cardiovascular System & Cardiology

Clinical Neurology

Life Sciences & Biomedicine

Neurosciences & Neurology

Peripheral Vascular Disease

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Gustafsson, L; Bower, K; Dobe, J; Walder, K; Lachman, R; Kay, KAA; Baggio, S; Roberts, M; Plastow, A, The Right Information at the Right Time - co-development of approaches to self-management support across the continuum of care, International Journal of Stroke, 2022, 17 (1_suppl), pp. 17-17